Privacy Policy

Privacy Statement

EmergingMed.com, Inc. (doing business as EmergingMed www.emergingmed.com) has been awarded TRUSTe's Privacy Seal signifying that this privacy policy and practices have been reviewed by TRUSTe for compliance with TRUSTe's program requirements including transparency, accountability and choice regarding the collection and use of your personal information. TRUSTe's mission, as an independent third party, is to accelerate online trust among consumers and organizations globally through its leading privacy trustmark and innovative trust solutions. This privacy statement covers the Web site www.emergingmed.com.

If you have questions or concerns regarding this statement, you should first contact Courtney Hudson at privacy@emergingmed.com. If you are not satisfied with our response you can contact TRUSTe here.

EmergingMed complies with the U.S.– EU Safe Harbor framework and the U.S.– Swiss Safe Harbor Framework as set forth by the U.S. Department of Commerce regarding the collection, use, and retention of personal information from European Union member countries and Switzerland. EmergingMed has certified that it adheres to the Safe Harbor Privacy Principles of notice, choice, onward transfer, security, data integrity, access, and enforcement. Upon request and within 30 days, EmergingMed will grant individuals reasonable access to personal information that it holds about them. In addition, EmergingMed will take reasonable steps to permit individuals to correct, amend, or delete information that is demonstrated to be inaccurate or incomplete. Please contact privacy@emergingmed.com or log into your account on the site to change, amend, or delete your personal information gathered on the Site. Information regarding the E.U. Safe Harbor Framework can be found at: http://export.gov/safeharbor.

TRUSTe European Safe Harbor certification
EmergingMed's Privacy Policy

Privacy Matters
Information we collect
How we protect your information
How to update or delete your information
Information gathered through syndication partners
What we do about "cookies"
Log Files
When we disclose information we collect to outside parties
Privacy of children
Your consent
Tell us what you think

Privacy Matters

EmergingMed understands that health is a very personal, private subject, and we want you to feel as comfortable as possible visiting our website and using its services. This statement sets forth our Privacy Policy and advises you about the information we collect, how we collect it, how we secure and protect it, and what choices you have about how that information is used.

EmergingMed knows that privacy and security are important to you and to all of our users. Earning and keeping your trust and respect is of primary importance to us. We pledge to protect your privacy and keep your personal information secure and confidential. We will not give, sell or distribute your information to any other organization for promotional purposes. Be assured that the personal information you share with EmergingMed is kept strictly confidential and fully secure unless you, the user, specifically request otherwise.

The personal information we collect helps us to provide the best possible information on clinical trial options.

Information we collect

EmergingMed is solely responsible for collecting and storing all personally identifiable information provided by visitors to our matching and referral service, either through www.EmergingMed.com or through one of our syndication partners.

If you have questions about this privacy policy or wish to register an inquiry or complaint, please contact Courtney Hudson, EmergingMed's Corporate Privacy Officer, (within the US) at 1.877.601.8601, extension 212, or (outside the US) 001.212.679.0072, extension 212, or via email at privacy@emergingmed.com.

We collect information from you in four distinct areas:

  1. Create a Username and Password
  2. Create a Patient Profile
  3. Contact Us Emails
  4. Submitting an Application to a Trial or Trials

The information we collect in these areas is limited to the information that you choose to share with us. The information is stored in the EmergingMed database until you decide to delete it.

1. To protect your privacy, our Create a Username and Password form can be filled out anonymously, meaning that no personal or identifying information is required. Email addresses are optional, unless you request to be notified when there are updates to the EmergingMed clinical trials database (which you can do by clicking the appropriate box). For maximum protection, we keep this information within our secure, password-protected environment.

By creating a username and password and providing your email address, you grant EmergingMed the right to receive, transmit, monitor, retrieve, store, and use this information in connection with the operation and maintenance of this feature. In accordance with the provisions of this Privacy Policy we will not give, sell, or distribute this information to any other organization.

2. The Create a Patient Profile form can also be filled out anonymously. Users can make up a name for themselves, their loved ones, or patients. Zip codes are required for matching to a clinical trial site. If you are filling out the questionnaire for someone else, we do not need to know that person's identity and we ask you to keep their identity confidential as well. EmergingMed cannot be held responsible for any personal disclosure regarding this information by you to any third party.

When you fill out a patient profile, you grant EmergingMed the right to receive, transmit, monitor, retrieve, store, and use this information in connection with the operation and maintenance of this feature. In accordance with the provisions of this Privacy Policy we will not give, sell, or distribute any personally identifying information to any other entity.

3. You may communicate with EmergingMed through ContactUs@EmergingMed.com or by calling (within the US) 1.877.601.8601, extension 201, or (outside the US) 001.212.679.0072, extension 201. You will receive a response to your call or email within two (2) business days.

When you contact us via email through Contact Us, you grant EmergingMed the right to receive, transmit, monitor, retrieve, store, and use your personal information in connection with the operation and maintenance of this feature. In accordance with the provisions of this Privacy Policy we will not give, sell, or distribute your personal information.

4. Only when you match to a clinical trial and decide to submit your interest in one or more trials to EmergingMed will we ask for your name, address, phone number, and email address. Contact information is collected on the Submitting an Application page and used by EmergingMed staff to facilitate communication between you and the trial coordinator. EmergingMed will not give your contact information directly to trial coordinators. Neither will we call you unless you grant us permission (which you can do by clicking the appropriate box and providing your phone number). Once communication takes place between you and EmergingMed, either by phone or through this website, we will assist you in contacting the clinical trial coordinator. You may revoke your permission at any time, and EmergingMed will immediately and permanently cease to follow-up with you.

When you submit an application for one or more clinical trials, you grant EmergingMed the right to receive, transmit, monitor, retrieve, store, and use your personal information in connection with the operation and maintenance of this feature. In accordance with the provisions of this Privacy Policy we will not give, sell, or distribute your personal information to any other entity.

Please keep in mind that in some instances the range of services available to users is tied to the information provided. Therefore, if you choose not to provide certain information or provide information on an anonymous basis, some services may not be available for your full use.

How we protect your information

EmergingMed keeps all your personal information confidential on a password-protected system. No other user can view or change your information without your Username and Password. EmergingMed puts you, the user, in control of your personal information. Your information is saved until you edit, update or delete it. You can edit, update or delete information that you have provided by sending an email to ContactUs@EmergingMed.com or by calling toll-free (within the US) 1.877.601.8601, extension 201, or (outside the US) 001.212.679.0072, extension 201.

EmergingMed wants your personal information to remain as secure as reasonably possible. That is why we have a system at EmergingMed that combines leading technical safeguards and a code of conduct for those employees that are permitted to access our users' personal information. On the technical side, EmergingMed uses Secure Socket Layer (SSL) technology to encrypt and protect your information while in transit between your computer and EmergingMed's secure server to help ensure the integrity and privacy of the personal information you provide to us. No method of transmission over the Internet, or method of electronic storage, is 100% secure, however. Therefore, we cannot guarantee its absolute security.

EmergingMed, Inc., located at 2605 Meridian Parkway, Suite 115, Durham, NC, 27713, United States of America, controls all personal data gathered via its own web site (www.emergingmed.com) as well as through its services embedded on all partner websites. All data is secured in a tier 1 hosting facility which is also located in Chicago, Illinois in the United States. Data-related questions should be directed to Courtney Hudson, EmergingMed's Corporate Privacy Officer, at 1.877.601.8601 extension 212 (within the US), or (outside the US) 001.212.679.0072, extension 212.

On the employee side, only authorized EmergingMed employees (with special passwords) are permitted or able to access your personal information. All EmergingMed employees must abide by our Privacy Policy and those who violate this policy are subject to disciplinary action, up to and including termination.

In order to provide you with a secure online experience, you will automatically be logged off of this service if there is no activity for 45 minutes. To continue, you will need to log in again, using your Username and Password.

How to update or delete your information

To change your password or email contact information or to delete your username and all the files associated with that username, send an email to EmergingMed at ContactUs@EmergingMed.com or call (within the US) 1.877.601.8601, extension 224, or (outside the US) 001.212.679.0072, extension 224.

To update a patient profile (in case your condition or treatment history changes), click "saved patient profiles." Find the patient profile you wish to update and click "update" next to that profile. You will see all of the information you entered for that profile. You may change any of the answers and click "continue" to save the edited profile. When you have finished changing your patient profile, you may resubmit it for matching against the enrollment criteria for the clinical trials in the EmergingMed database. Or you may go back to review all of the patient profiles by clicking "saved patient profiles."

To delete a patient profile, go to "saved patient profiles," find the profile you wish to delete and click "delete" to the right of that patient profile. The information in that patient profile will no longer be available for matching to the enrollment criteria of the clinical trials in the EmergingMed database.

Information gathered through syndication partners

EmergingMed has entered into relationships with several partners that host the matching and referral service on their websites and in their call centers. Visitors who enter the EmergingMed matching and referral service from one of our syndication partners' websites are still bound and protected by the EmergingMed Privacy Policy. No individually identifying information will be exchanged between EmergingMed and any of our syndication partners. In some instances, aggregate (grouped) information will be provided to these partners in order to monitor the effectiveness of this syndicated service in helping their constituents pursue clinical trial options.

What we do about "cookies"

"Cookies" are small pieces of information that are stored by your browser on your computer's hard drive. EmergingMed does not store information about you in cookies that we can find and use later. Therefore you can feel secure that unless you choose to share information with EmergingMed in one of the four areas described earlier, we will not collect any personally identifiable information about you without your consent.

EmergingMed does employ what are known as "session cookies" that allow you to move around the website without being forced to reselect a disease area. Those session cookies are deleted when you leave EmergingMed. They are not used to track and store personal information about you or your internet use.

Please be aware that websites to which EmergingMed links may collect personally identifiable information about you and may have different practices and policies concerning privacy issues. This Privacy Policy does not cover the information practices of other websites.

Log Files

As is true of most web sites, we use a third party tracking–utility partner to gather certain information automatically and store it in log files. This information includes internet protocol (IP) addresses, browser type, internet service provider (ISP), referring/exit pages, operating system, date/time stamp, and clickstream data.

We use this information, which does not identify individual users, to analyze trends, to administer the site, to track users' movements around the site and to gather demographic information about our user base as a whole.

When we disclose information we collect to outside parties

Except as set forth in this Privacy Policy, we will not disclose to unrelated persons or entities any information you provide to EmergingMed that could be used to identify or contact you ("personal information"). Any personal information provided to persons or entities affiliated with EmergingMed will be treated in accordance with the terms of this Privacy Policy, unless you are otherwise notified. In the following limited circumstances we will consider, and may release, personal information to third parties: (1) as required by law, such as to comply with a subpoena, or similar legal process, (2) when we believe in good faith that disclosure is necessary to protect our rights, protect your safety or the safety of others, investigate fraud, or respond to a government request, or (3) if EmergingMed is involved in a merger, acquisition, or sale of all or a portion of its assets, you will be notified via email and/or a prominent notice on our Web site of any change in ownership or uses of your personal information, as well as any choices you may have regarding your personal information.

With your specific consent, EmergingMed may provide your personal information to third parties in order to assist you in finding a clinical trial that may be appropriate for you. Personal information will only be shared with third parties with your specific consent, and will be transmitted to those third parties using specialized encryption software, much like that used in a banking transaction. EmergingMed may also enclose personal information in a message sent to you through email or regular mail at your request. These messages -- which may take the form of a general update or a specific response to your questions -- will be sent to the email address or physical location you specify.

EmergingMed may provide non-identifying (aggregate) information about our users to third parties. For example, we might inform third parties about the number of users of our site who are interested in information about a particular disease category, or information about the number of users who live in a particular geographic region. We may also provide aggregate information to entities for the purpose of determining whether additional clinical trials are needed in a particular disease area. Depending on the circumstances, we may or may not charge third parties for the right to access this aggregate information.

Except as provided in this section, EmergingMed will not disclose to unrelated persons or entities any personal information that you provide to us. The Create a Username and Password and Patient Profile systems are powerful storage tools that we hope you will find useful. Please note, however, that you are responsible for taking all reasonable steps to ensure that no unauthorized person shall have access to your username and password or Patient Profile. It is your sole responsibility to: (1) control the dissemination and use of usernames and passwords; (2) authorize, monitor, and control access to and use of your usernames and passwords; and (3) promptly inform EmergingMed of any need to deactivate a username or password. You grant EmergingMed the right to receive, transmit, monitor, retrieve, store, and use your personal information, including information that may be privileged and confidential under applicable state and federal laws, in connection with the operation of or maintenance of your Patient Profile and account. EmergingMed cannot and does not assume any responsibility or liability related to the accuracy or inaccuracy of the information you provide to us. EmergingMed also cannot and does not assume any responsibility or liability related to your or third parties' use or misuse of information transmitted or received using EmergingMed.

Privacy of children

EmergingMed does not collect, maintain, store, or disclose personal information about children under the age of 13.

Your consent

By creating a username and password (registering) and filling out a Patient Profile, you grant EmergingMed the right to receive, transmit, monitor, retrieve, store and use your personal information, including information that may be privileged and confidential under applicable state and federal laws, in connection with the operation or maintenance of these features.

EmergingMed cannot and does not assume any responsibility or liability related to the accuracy or inaccuracy of the information you provide to us. EmergingMed also cannot and does not assume any responsibility or liability related to your use or misuse of information transmitted or received on the site.

EmergingMed has the right to suspend or eliminate your right to use this site and to remove any information that you have placed on our site. EmergingMed may also change this Privacy Policy at any time by posting revisions on our website. Your use of the site constitutes acceptance of the provisions of this Privacy Policy and your continued use of the site after such changes are posted constitutes acceptance of each revised Privacy Policy. If you do not agree to the terms of this Privacy Policy or any revised policy, please exit this site immediately.

If EmergingMed decides to materially change how we use personal information or your personal health information, we will notify you by posting a notice on the website, homepage or by sending you an email if you consented to receive email communications from us prior to the changes taking effect.

Tell us what you think

If you have any questions about this privacy policy or wish to register an inquiry or complaint, please contact Courtney Hudson, EmergingMed's Corporate Privacy Officer, at (within the US) 1.877.601.8601, extension 212, or (outside the US) 001.212.679.0072, extension 212, or via email at privacy@emergingmed.com.

Visitors who send an email message (no attachments, please) can expect a response within two business days. We return phone calls within one business day. Regular mail inquiries will be processed as soon as possible.

Revised: February 4, 2014